I am happy to report that Edgar received a (mostly) clean bill of health at the ophthalmologist's yesterday. Two and a half hours spent there, eyes dilated and looked in, vision tested, and the only thing of any concern is astigmatism
in both eyes. She has binocular fusion
unlike Mama, does not have strabismus
unlike Mama, though I will note I'm in good company
, can see with 3D glasses unlike Mama, and most importantly, does not have Retinopathy of Prematurity
. Given the length of time she was on oxygen, I was a little worried about that. She is a little farsighted. The astigmatism is normal for a child of her age, as is the farsightedness. She will likely grow out of both and will be seen again in a year to check on her progress.
Last week, I realized that I had been noticing an odd smell on her breath for a few weeks. I took her in to see the ped and they did a bunch of blood tests. Her kidney and liver functions all came back normal, as did her iron and everything else they test for in a CBC. This sheds no light on the breath thing. Before you comment and tell me to have her checked for diabetes, be assured that that was part of the blood tests and she shows no other symptoms of diabetes. It's also not a fruity odor, it's pretty much exactly what green olives smell like. It has persisted for several weeks. I posted about it on a couple of my email lists and I got one very interesting reply back from a mom who had a child about the same age as Edgar, who had also been a preemie. She asked me if Edgar had ever had TPN
, which she had. She told me that her child had as well and after noticing a strange smell on his breath at around two years old, she did a bunch of research and ended up having him tested for aluminum toxicity. He was toxic for aluminum and is now having chelation therapy
to remove it and has shown marked improvement in his health and development. the only symptom she noticed was the weird breath, which she said smelled like vinegar, so similar to the green olive smell Edgar has. TPN has a lot of aluminum in it, as do the vaccinations babies receive. She sent me a link to an article by Dr. Bob Sears discussing aluminum
and the lack of studies done on safe levels, especially for babies. Preemies have compromised kidney function and therefore may have more trouble than a healthy baby eliminating aluminum. So I will be speaking with the ped and asking for a hair strand test for aluminum toxicity. The fun never ends when you have a preemie, I tell you. Just when you start to get comfortable and think that your child is FINALLY, FINALLY out of the woods, at no more risk than a term kid her age, something else comes up that throws you back into the cycle of worry-worry-worry.
In other Edgar news, she is growing like crazy. I marked her height in the doorjamb and looked at the previous markings. Since we started marking her in January of this year, she's grown about four inches. She's grown about two inches since August alone! Maybe she won't be the teeniest one in her Kindergarten class.
Her speech is growing by leaps and bounds. I wish I could record the conversations we have in the car on the way in to daycare in the mornings. This morning she told me that the doctor needed to touch me, but it was okay, she would hold me and feed me candy, here's another one, and another piece! (I had Smarties and stuck them in her mouth one ofter the other while the blood draw was going on, since sugar can help small kids deal with pain. Learned it in the NICU!) She's processing the stuff that she's been through in the last two weeks with the blood draw (very traumatic) and the eyedrops (omg, world-ending! so much worse than blood draw!) to dilate her eyes yesterday. I talked to her about how sometimes doctors need to look at our bodies or we have to do something that hurts so that we can make sure our bodies are okay.
Her abstract thinking is astonishing us. She extrapolates things where we'd never expect it from a toddler her age. I can't think of any examples, but it happens daily. She is also a total clown. She'll spew a series of musical notes and then when I copy them, she wags her finger at me and says "Nonononono. Like DIS!" and then does a different series. Repeat as long as I keep copying her. I never get it right. Heh.
She continues to have a wonderful relationship with her sister, though she does abuse her terribly sometimes. Bob never ever retaliates, though I do have to remind Bob that she can move away from Edgar when she hits her or pulls her hair instead of sitting there and crying while Edgar does it again. They adore each other. Edgar gets jealous when I hug Bob or stroke her hair. When Edgar hits Bob, I've started paying attention to Bob, making sure she's okay, instead of telling Edgar not to hit her sister. Edgar is not pleased with this change in procedure.
She's not at all interested in using the potty. She loves being bare-butt, but has not done any elimination in the potty. She did poop on the floor once though. ;)
She runs and jumps and tries to hop on one foot. She climbs stairs without assistance and often without holding onto the railing. She can't wait til she's big enough to ride Bob's old bike.
She had almonds for the first time yesterday and loved them. I only gave her three halves, so I could monitor for any reaction. There was none, so I'll let her have a few more tonight.
She has a full head of curly light brown hair with reddish highlights. She looks a lot like her daddy, even moreso than Bob does, and sometimes I wonder if there's any of me in there, but the curly hair is from my dad.
She's happy all the time, goofy, funny. She continues to be an utter delight.